Rare disease costs millions to society each year

In the first study of its kind, researchers at Karolinska Institutet and Newcastle University in the UK have estimated the economic burden of Duchene muscular dystrophy (DMD) to the public healthcare, affected households and society as a whole. According to research published in the July 2 issue of Neurology, the medical journal of the American Academy of Neurology, a typical DMD-patient annually costs society up to SEK 800,000, resulting in a total burden of SEK 480 million for the DMD population in Sweden.